Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts

Thursday, November 3, 2011

i'm not dead yet

We are at the halfway point in Peters treatment.  But it does not get easier, at a  benefit dinner for for seminarians we get the phone call that Pete has a 103.5 fever.  What to do, give him Tylenol hope the fever goes down and take him to the hospital in the morning or get to the ER around 10:30 p and get a room around 4 am. .  He should not be nutrapenic (no immune system) yet ,he finished the last round of Sunday and his numbers were really high on Weds. So he should not be in danger , we call the hospital to see what to do and they say come on in, we will check his blood and see where he is at and if it is ok he can go home. Of course his numbers have plummeted and at 4:30 am we are back on floor 8.  Blood cultures, nose cultures and a chest X ray later we do not have any idea what the problem is.  It points to something  respiratory so it's either contagious or not and till we find out Pete can't leave the room and everyone except family need to dress like spacemen to visit.

So this tale starts on Friday night and we are now at Sunday night (JETS jets jets jets). Still no real diagnosis, informally the Docs think it is walking pneumonia  and that is not contagious but till we know for sure we are still in isolation. There was another fever today so we are 48 hours from leaving as they take more blood cultures. We continue to hope there are no nasty infections lurking , Peter has more antibiotics surging thru his system that any bug that beats that will be one bad mo fo.

 Today at church (ST. Joes ) the pulpit announcement asks us to pray for the repose of the sole of
Peter Searsearch , wow thats a close name how weird is that.  Turns out not so weird one of our friends had a mass for Peters health and they killed him instead. After a couple of frantic calls from friends we returned him to the land of the living now we need to get him home.

Saturday, October 15, 2011

Vampires and Hand jobs

3 months in and we are at the clinic waiting to find out if Peter will need blood products (yep that's what they call it).  He has need blood and platelets in the past so this is not longer as weird as it should be.

 The Doc comes in and says lymphoma will hide in the testicles. From what I know lymphoma doesn't really hide at all , it shows up as a big freaking tumor but as I am constantly reminded I am not a doctor or a radiologist. So now this resident is going to feel up my son.  I casually mention that we have been in treatment for 3 months and you are the first doc to mention that his testicles need squeezing and since he is 17 I think he'd prefer it if you didn't put on the big  plastic gloves.  This is why the residents don't like me.  

I remember being 17 and I would not have lived through the embarrassments my son has had to endure, though he is thinking about getting a tramp stamp that says exit only with a sign pointing down.

Luckily my sister sent us seasons 1 thru 4 of It's Always Sunny in Philadelphia, which lets a father and son talk more frankly and a lot more funny.  So after the Doc is done with her slap and tickle I turn to her  and to my son's horror say I think I have cancer now too.  (this is stolen directly from the show). He thought is was really funny , not so much her.

Turns out no need for blood products, he gets to go home.

Next Day Edit

A friend asked why I bagged on the Doctor for the hand job.  I think I must explain.

The Protocol that Peter is on is unchangeable.  That means if his nuts swelled to the size of softballs (the original size of his tumor) the regimen of treatments would go on exactly as they are right now.  4 more Chemo's and some radiation at the end.  This Lymphoma spreads and hides that is why the regimen is so intense, very quick but very strong chemo agents. This protocol works and has worked for 15 or more years and this resident was not doing anything to help.  Most of the residents we have met are great, 2 have been too smart for their own good.  This Resident did not help and lost the patients confidence .